Being scorned and told you made mistakes by a 67 year old at the age of 53 is ludicrous and humiliating. Experiencing that when he is fully aware that you have a brain injury is demoralizing. Keeping it up until you leave for the hospital because you fear you’re having another vascular lacunar stroke is inhumane. Making you leave and having to beg to be allowed to take your life saving medication and what you can fit in your car – there are no words.
When you are upset and can’t handle anymore, you can barely speak coherently without wailing/crying uncontrollably and can barely get the words out that you are at at the point of driving out to the desert and slashing your wrists, he makes a comment that it isn’t a bad idea.
The wife is an old friend, but she barred me from entering the house yesterday because I crossed the line. When I went to Emergency the other night, after the bru–ha-ha with them, and my pathetic past of failures to see to myself before anyone else, she was done because I had posted about her daughter on Facebook. I hadn’t used her name, it was pretty much “my friends daughter” was there too. That is it. She may have had a viral infection like I did last weekend. I don’t know and I didn’t speculate. I just said I saw the young woman there. I haven’t gonne back to see the post.
Wait -I’ll go check. My comment was the wife was taking the teenage daughter to the ER and he husband didn’t want to be in the house with me without his wife. No names. I was verbally violent – his parting shot that night. Because I had told him to Fuck himself after hours of bombardment. Yeah, by your estimation, I screwed up when I sacrificial my life to take care of mom. What did it get me? A stroke and homelessness it seems. And not able to work due to that brain damage.
Vascular lacunar stroke is a serious Mother, especially if you’re not in your 60’s when it happens, because there are no statistics if you are 49-51. I am 53 4 months and 9 days, in case you were wondering. I had the stroke 21 days short of two years ago. The last and most debilitating one. I’ve had at least two others previously. Maybe more. They aren’t sure. The lesions and dead brain matter overlap in differing severity.
They didn’t happen before 2012. That much I know. My vision was fine, I had my meds, and Mom hadn’t tried to kill me yet. Yet. That would change, but she died in May 2015. Yeah, you’d think. Her ‘Memory”still had an active force in my life in the form of her family. I was trashing the dead. How about her trashing my life? Never acknowledging her step son, who was all of 2 when she married Dad. Dad was a philandering snake, ok? But he was a good father to me and kept most of Mom’s shit out of my life, even her hatred of his family. Mom’s Christian upbringing was non-existent, other than drilling into my head what was acceptable, proper and expected. AndI got a beating when it wasn’t to here exacting, ridiculous standards. Even when I was 48 and she was 86. Slap and hit my head while my left arm is her death grip. Did I hit her? Defend my self against an 86 yo sociopath? Fuck no. She would have me arrested for elder abuse. She tried every chance she got. I stole from her, refused her food, was trying to steal her house, had stolen her car (that was also registered to me because she couldn’t drive and had surrendered her license thank God), I stole her mail, put loans of her property (car insurance that had my name on it since I was a licensed driver), the electricity bill (since she refused to pay for it since they were cheating her – a supposed loan I had made) and any piece of mail that could set her off. Which was anything. God forbid it still had Dad’s name on it. That was my fault. I was torturing her on purpose.
She wouldn’t write “deceased” on direct mail. Who’s fault, crazy woman.
Anyway, I never saught any services through Riverside County, because it was made clear I was just there for her and I was a capable adult and could work and maintain my life, but Adult Protective Services was watching! She had Alzheimer’s. Get a letter from her doctor. Who? The one who called you and reported me? She needs APS, when she tried to stab me?
If I couldn’t get a doctor to put in writing she had Alzheimer’s, do you think I could ger a letter stating I’m caring for her 24/7? That I took her to every doctor’s appointment, held her breast during a mammogram while she chortled not to get any ideas about a quick snack (I was 48 at the time, and she was 86 – yuck sick gross, you never breast feed me – and I really didn’t need to hear how Dad was such an excellent lover. There is no brain bleach!), flew down when she ripped out her hip and stayed for weeks and worked remotely from her house, drove down when she fractured her hand because she didn’t use a walker or afhere to physical therapy plans – ever, when she had a sore that wouldn’t heal on her face and I insisted she have a referral to dermatology and it was found it was melanoma and I had to look at her open face, teeth and gums to make sure they had done a good job. Because I am as much of a nurse as SHE WAS.
So much pent up fury, but I’m lying. She wasn’t like that AT ALL. Not in her youth or as they remember. Maybe. Pretty selective convenient memory.
And after all I went through and had to learn, because they learned nothing as immigrants other than what they absolutely had to, I have to learn for the first time.
Social Services – Food Stamps check. General Assistance check. MediCal check. Social Security and Lawyer Check. Housing – I have names, addresses, phone numbers.
I now I have a $226 car repair because I can’t drive without 1 tire and a 2nd ready to blow.
I slept in my car last night, and thank God I had my blanket and parka. It dropped to 42F this morning. My back still hates me. And I’m using my cane and sacrificing the aircast. My right foot is screaming, but I can walk with one good leg and not fall. The cane, the cast and me weren’t copacetic and I crashed into people and things and was a human Weeble wobbling close to falling down. It’s a precious look. Very fashionable.
I should find a food kitchen for later. I had a glazed donut. Couldn’t help but think of Bill Cosby and his bit about Glazed Donuts, but he was funny then. Not a predator.
I officially suck at adulting. It’s in print.
I leave this here again, http://www.gofundme.com/Life4V
Please go. See if you can help. Even $5 makes a difference.
And for God’s sake, tell the press, a news staton, a reporter or podcaster. My story isn’t common. The epitome when everything is done right and with the best intentions, and it still everything considered award-winning Muphy’s Law, thats special. Even “thank God not me” worthy. The last 5 minted on the evening news. Because I’m just crying wolf. There is no one out there like me. Contra Costa treats every patient like a close family member. No one has suffered, is suffering or has died in their care.
I remind you – 2 years for a diagnosis of vascular lacunar stroke. Other than the emergency room and a speech therapist, no other medical provider said a word about my stroke, other than shock I would want another aneurysm if I stopped taking Clopidgrel – there are other blood thinners that don’t cause eye hemorrhages with those who have retinopathy (I do), I have a pyschiatric issue with depression and an eating disorder when in fact my central nervous system has taken hit, I have a hiatil hernia (barium test showed that and another issue) and everything else you said is a lie, because you’re an old, ignorant fart that shouldn’t be handling medicine anymore. Or that Nurse Practitioner who lies to colleague’s and police and claim you assaulted her. Sure. An invalid with a cane sitting outside her reach and you behind a computer. Pretty fancy jujitsu. Pity I’ve had known.
But I’m just a whiner looking for attention. Why would I think there’s anything wrong with me? Because I have a history of VLS and you summarily dismissed it. And you mentally tortured me. Happy? Said I needed a shrink for my Pseudo-Bulbur Affect, for my eating disorder when I choke on my own spit, can’t process my daily tasks any way like I used to, can’t communicate as I used to except in writing. It would take me hours to say this with lot’s of umms and pauses and minutes for my mouth to catch up with my brain, or my brain to slow down to process the painful reality of articulating words. Just finding the words that I can say, clearly.
I’m sure I’m the only one.
Excuse any typo’s. Had to use the phone when the computer froze.