I am Disabled and I Have Little Hope

I’m 53.

I had a Lacunar Stroke 11/29/16.

No doctor cared for my medical issues for 19 months. No one. I was even told I didn’t have “symptoms” and I wouldn’t be referred because the doctors didn’t have time for patients who weren’t truly sick.

When I said I couldn’t eat, I was told I needed a Psychiatrist for my eating disorder , even though I choked on my own spit, would reguritate when trying to eat, had no hunger, thrist, or produced saliva sufficiently. My speech therapist recommended a barium test, which he scoffed at and informed me that no speech therapist is trained to practice medicine, and it was an eating disorder.

Uh-huh.

And first time stroke patients don’t have Pseudo-Bulbur Affect. Yeah right. I need a physciatrist because I’m crazy? I’ll believe you. You were a geriatric doctor for years and you should know? I’ll pass on your “knowledge” you dumb fuck.

An actual neurologist said I had a “minor stroke”. I needed to see a physciatrist for my depression. First time in my entire life I walked out on a “doctor” when she told me that.

I was physically restrained by police and bound to a gurney when a Nurse Practitioner accused me of assaulting her. I have PTSD after that quaint encounter and visiting Psychiatric ER and being told I was grandiose and delusional.

I now have medical coverage that treats me like a human – not a number and a file and nothing is wrong. I have Contra Costa Health Plan to “thank” for nearly 2 years of hell. I now have coverage from Alameda Alliance. I had to “move” to Alameda County, but I’m homeless so I just had to find a home to sleep at. I have an old friend who gave me a spare bed and safety. Better than being raped or murdered in my car.

I do research when I don’t know something. I have done more research and came across this:

https://en.m.wikipedia.org/wiki/Binswanger%27s_disease

Binswanger’s Disease. Similair to Alzheimer’s but can be caused by a type of stroke. Vascular Dementia. I see a doctor on November 1st at Neurovascular Services of UCSF. I am hoping that I don’t have Binswanger’s, but I am still dreading the outcome. At least I will know. Finally. But it’s me and I get weird stuff no one diagnoses for years, so it’s probably true.

Onset is usually between 54-65. I was 51 when I had the stroke, but there is evidence I had an infarct, and I know when. It was in the Spring of 2014 when I was caring for my adopted sociopathic narcisstic dementia ridden mother and she had already thrown out my meds and I had to go to Emergency, and they did no tests to find out what was wrong. I just had a BP of 3xx/17x. They released me when my BP was normal and I got no meds or a followup with a doctor. I was a few months from 50 then.

Figures. They refused to put in writing that “Mom” had demntia, even though it was clearly noted in her medical file. I know. I saw it. They mishandled her care until she died in May 2015.

That was in Southern California. I returned to the Bay Area after my SoCal sojourn and moved in with a friend who siad I could stay with them until I found a job and a new home, since I had to sell Mom’s, because that crazy bitch tore up her living will and the grant deed adding me to the house. She was bat-shit crazy and it ruined my life more than once. And since I paid the bulk of the mortgage, and it was a 2nd mortgage, I technically had been paying on that house for 8 years.

But, I came back here with a pittance of an inheritance to start my life again. She got me fired from my job, though they called it a layoff due to plant closure, but they stayed open for another 2 years, and I had been there for 5 years and knew where the proverbial bodies were buried.

I couldn’t work and take care of Mom. She always made everything about her. Kinda like Trump. Full-time chaos. Grrrr.

I came home and within 2 months I had the stroke. Most of my belongings had to be stored, including what I had to move to storage when my “friend” said they were moving and I had to go because I was ruining their happiness. You know what? They’re still there! Jerks.

I got no help from Contra Costa in finding a home. I’m running into the same problem with Livermore Housing Authority, but I have organizations to call. Whatever is wrong with me, it makes daily functions hard to figure out. I get overwhelmed and need to sleep. Or pass out. I don’t “decide”. It just happens.

I have filed for Social Security and am waiting for a hearing, as I have been denied, but I can’t blame them. There is no patient history other than an ER visit and hospitalization. That’s pretty much it, other than tons of prescriptions for things I did not have. Not enough to give me early SSI.

So I have a GoFundMe campaign. There is a reason for that. I am broke. I have food stamps (which Contra Costa screwed up this month) and I have General Assistance I have to pay back. $192 and $300 for each. At least I get GA through Alameda. CC said if I had $50 in the bank, I didn’t qualify. I had to find a job. Yeah right. I can’t do 3rd grade math and I was a finance analyst/assitant controller amd FX was one of my speciaties, but I’ll find work. If I could walk and stand up without tipping, or become so confused if I hear two things at once and I forget what I was doing, but I’ll figure out some mundane task to be paid minimum wage if an employer wants a fall risk on their payroll.

You need money to live, especailly if you’re a hypertensive diabetic with pernicious anemia and retinopathy. I take 9 medications by mouth daily. I take an insulin injection once weekly (better than twice a day just 1 month ago) and I take an injection once a month for Pernicious Anemia. I take blood sugar tests 2-3 times a day and my BP reguarly. That’s a lot to keep track of, but I manage. Everything sits within view and I set up my meds on a weekly basis, morning and evening. I have OCD, which comes in handy now.

I have carpal tunnel and a doctot has recommended surgery. My glasses prescription is 6 years old and my eyes have changed and not just because retinopathy. I drive a 1998 Oldsmobile Cutlass that my Dad bought before he died and it needs maintenance and wiper blades. I’ve got a Dell laptop from 2008 and it needs some time at Best Buy for worm removal and driver restoration.  I can’t use my Tower because no currently paid virus protection.  And my AAA Road Service has lapsed for non-payment. I stopped paying my credit card (just 1 – in case of emegency) months ago.

The GoFundMe is to provide for the cost of living until SSI comes through, hopefully soon. A friends’ sister was recently approved and that took 3 years. I’m a year and half in and had a lousy lawyer for the first 9 months.

My main storage unit is at Towncentre Self Storage in Brentwood and they won’t take partial payment per the district manager because it screws up their lien process. I am behind and the site manager has been told she can’t take a partial payment.

I am getting screwed out of my belongings – my life – because the District Manager is doing her job. Yes, they know about my situation. Yes, the site manager has compassion, but it’s still a businesa of real estate and that real estate has a price that needs payment.

Could I pay them $300? No. I need to pay them $660. I might be able to get $600, but I won’t be paying my car insurance, gas for that car or cell bill this month. $660, or she can’t take it.

My other unit is paid until November 29th. The rest of it is under a tarp on the patio where I am staying.

I need a place to live that has my things and not in storage. I purged everything I could when I packed Mom’s house. Gave away all I could. Even had a garage sale and listed on Criagslist. I lived in the backwater of Riverside County and they are CHEAP! 7′ aliminum ladder, months old that cost $70 at Home Depot, a little shit got it for $10 and it was SO EXPENSIVE. I sold it to him just to get rid of it, and he was pissed because I ripped him off.

Sure I did. That’s what privileged white people do that live in retirement communities. I hated it when Mom pulled “But I’m not from here, I don’t speak your language” crap. They know. They just assume you’re stupid or racist. I’m neither. I just hate that “I’m foreign, feel sorry for me” bullshit.

Think I don’t know? If you had any idea how many times I’ve told people I was born here and they don’t believe me – because of my name – and compliment me on my “good English”, I’m surprised I’m still free , because some folks need the stupid smacked off their smug mugs.

I’ve tried going to the press/media but I guess some one crying wolf isn’t sympathetic, even if it is real. I’ve lost my ability to work, to enjoy hikes, to drive to a nice area to walk away my worries for a few houra in nature, to sit and knit or do needlework or needlepoint, even to read for an hour or two, without my chaosed mind refusing to cooperate. I need some peace and that requires money. If I have to think about that, it becomes an obsession and I can’t sleep until I pass out, which for me varies amd depends if I have eaten well or just enough. If it’s just enough (1 meal a day and hopefully not Ramen), I can go 2-3 days without restful sleep, and my brain can’t take that.

Please go to my Campaign gofundme.com/Life4V and donate. I need help. I want to Live for however long I have and with my memories and savored remembrances of a life well lived.

Author: Vykinghart

A divergent catalyst trying to make the world a better place while screaming from a tiny soapbox.

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