Trying to take care of things, but living out of a car is hard. Especially when there are two of you and a dog, and the human Male has ADHD and a short fuse. A loud fuse. He was spoiled by his mom throughout his life and lives that reality. Facing the daily truth is too hard for him since it is his brother’s doing. But Gary isn’t dealing with it. I am. Someone has to, because Will shouldn’t die like this. His mom would never want that. I respect Dorothy’s memory too much for that.
Paperwork is “misplaced”. Keeping track is hard, especially when he moves stuff and the car is “messy”. I try to keep it clean, but he shoves trash in nooks and crannies to be “throw out” later because his back hurts so much. I keep a trash bag and place trash in there and he stuffs that into a clear cranny and it is overlooked until the smell starts. Yuck. Cleaning the car is a weekly chore I go through and he fusses he’s tired.
It’s like being married without any sex. That’s why he’s a trophy husband. He makes up for it 95% of the time. That 5% is a challenge due to my disability, which he doesn’t really understand part of the time. He doesn’t understand I can’t control the emotional outbursts. They can improve with therapy, but my neurologist doesn’t know how to refer me with MediCal.
That meeting was so depressing yesterday. My deficits are no doubt permanent. If I have another stroke, go to Valley Care/ Stanford Medical, otherwise good luck. No further follow-up, until I have another stroke. Gee thanks. That’s what I wanted to hear. UCSF was more upbeat than him, but they didn’t send him the notes from the last meeting, so he had nothing to review or reference.
It seems I have to make sure everyone gets the information they need as it happens. No one talks to anyone else, or faxes the documentation to the referring doctor. I’ll follow up with my new PCP. She is on top of referrals and medication, more so than the last one. I got my optometry referral already. I see the doctor next Friday!
I talked to Social Security today and updated my address. The appeal decision can take 2-3 months, more than likely 2. They are improving! Until that has been typed into the system, nothing moves forward. 2 months!? I can’t handle this, especially since Contra Costa screwed up so bad. I have too much to pay out when I receive the Award, whenever that is and if they don’t question something or they want something else. I just know other’s who have had issues and it doesn’t help my paranoia.
What I need to take care of in the next month:
– My car registration that was due 12/8/2018
– My main storage unit that they have offered to let my pay half if I get it moved out within 3 days of paying IN CASH approx. $1500 and not including a truck or helpers to load to a truck(s)
– Paying my 2nd storage unit because it’s behind as I didn’t have the funds when it was due. Cell phone and car insurance has to be paid and there wasn’t enough left over for that since the $320 a month for General Assistance goes to gas for the car too. And we have to go to the doctor’s and move around or be sited for loitering.
– A motel room for 1 night a week for a shower and to sleep flat. Will needs it nightly, but 1 night a week is ok for me. My back readjusts and I’m ok for a week. He needs his back surgery and a referral to an oncologist.
-My car fixed. I “beached” Cutty (Dad’s 1998 Oldsmobile Cutlass) on a median in the dark and in the rain and it has happened before to others, including a car that a tow truck helped an hour before me. My alignment is so off, I had to have 2 tires replaced and the back strut is “peeing” (must be replaced). I have no money for that. I used what I had from a small inheritance I received for the tires so I could drive and that’s all gone now. Kevin, my new mechanic of choice, said the strut would be another $250, not counting the alignment or whatever else is wrong with Cutty as she creaks more than she ever did. There is more damage that we don’t know about.
That is just some of it, but the most pressing. A home would be nice, but not in the horizon with all the issues having to do with project specific paper work and no award letter stating I am receiving SSI. I have nothing and no hope for the future, because if my appeal is denied, I can appeal again and I will give up. I can’t go through this again sleeping in the car. And there is no help with Homeless Services. That is just a joke. I can’t get my car registration paid without getting an updated bill from the DMV as if they would pay it then. I have given them a bill, a printout, with dates to pay by and they blew right past those. I can’t trust or depend on CityServe.
Please help if you can or share. I need help because the services for a person like me (disabled and not an Addict or with a record) aren’t there. I am able to be “well”, supposedly. No, I’m not and either is Will. We can wait, if we don’t die first.