I had a Lacunar Stroke 11/29/16.
No doctor cared for my medical issues for 19 months. No one. I was even told I didn’t have “symptoms” and I wouldn’t be referred because the doctors didn’t have time for patients who weren’t truly sick.
When I said I couldn’t eat, I was told I needed a Psychiatrist for my eating disorder , even though I choked on my own spit, would reguritate when trying to eat, had no hunger, thrist, or produced saliva sufficiently. My speech therapist recommended a barium test, which he scoffed at and informed me that no speech therapist is trained to practice medicine, and it was an eating disorder.
And first time stroke patients don’t have Pseudo-Bulbur Affect. Yeah right. I need a physciatrist because I’m crazy? I’ll believe you. You were a geriatric doctor for years and you should know? I’ll pass on your “knowledge” you dumb fuck.
An actual neurologist said I had a “minor stroke”. I needed to see a physciatrist for my depression. First time in my entire life I walked out on a “doctor” when she told me that.
I was physically restrained by police and bound to a gurney when a Nurse Practitioner accused me of assaulting her. I have PTSD after that quaint encounter and visiting Psychiatric ER and being told I was grandiose and delusional.
I now have medical coverage that treats me like a human – not a number and a file and nothing is wrong. I have Contra Costa Health Plan to “thank” for nearly 2 years of hell. I now have coverage from Alameda Alliance. I had to “move” to Alameda County, but I’m homeless so I just had to find a home to sleep at. I have an old friend who gave me a spare bed and safety. Better than being raped or murdered in my car.
I do research when I don’t know something. I have done more research and came across this:
Binswanger’s Disease. Similair to Alzheimer’s but can be caused by a type of stroke. Vascular Dementia. I see a doctor on November 1st at Neurovascular Services of UCSF. I am hoping that I don’t have Binswanger’s, but I am still dreading the outcome. At least I will know. Finally. But it’s me and I get weird stuff no one diagnoses for years, so it’s probably true.
Onset is usually between 54-65. I was 51 when I had the stroke, but there is evidence I had an infarct, and I know when. It was in the Spring of 2014 when I was caring for my adopted sociopathic narcisstic dementia ridden mother and she had already thrown out my meds and I had to go to Emergency, and they did no tests to find out what was wrong. I just had a BP of 3xx/17x. They released me when my BP was normal and I got no meds or a followup with a doctor. I was a few months from 50 then.
Figures. They refused to put in writing that “Mom” had demntia, even though it was clearly noted in her medical file. I know. I saw it. They mishandled her care until she died in May 2015.
That was in Southern California. I returned to the Bay Area after my SoCal sojourn and moved in with a friend who siad I could stay with them until I found a job and a new home, since I had to sell Mom’s, because that crazy bitch tore up her living will and the grant deed adding me to the house. She was bat-shit crazy and it ruined my life more than once. And since I paid the bulk of the mortgage, and it was a 2nd mortgage, I technically had been paying on that house for 8 years.
But, I came back here with a pittance of an inheritance to start my life again. She got me fired from my job, though they called it a layoff due to plant closure, but they stayed open for another 2 years, and I had been there for 5 years and knew where the proverbial bodies were buried.
I couldn’t work and take care of Mom. She always made everything about her. Kinda like Trump. Full-time chaos. Grrrr.
I came home and within 2 months I had the stroke. Most of my belongings had to be stored, including what I had to move to storage when my “friend” said they were moving and I had to go because I was ruining their happiness. You know what? They’re still there! Jerks.
I got no help from Contra Costa in finding a home. I’m running into the same problem with Livermore Housing Authority, but I have organizations to call. Whatever is wrong with me, it makes daily functions hard to figure out. I get overwhelmed and need to sleep. Or pass out. I don’t “decide”. It just happens.
I have filed for Social Security and am waiting for a hearing, as I have been denied, but I can’t blame them. There is no patient history other than an ER visit and hospitalization. That’s pretty much it, other than tons of prescriptions for things I did not have. Not enough to give me early SSI.
So I have a GoFundMe campaign. There is a reason for that. I am broke. I have food stamps (which Contra Costa screwed up this month) and I have General Assistance I have to pay back. $192 and $300 for each. At least I get GA through Alameda. CC said if I had $50 in the bank, I didn’t qualify. I had to find a job. Yeah right. I can’t do 3rd grade math and I was a finance analyst/assitant controller amd FX was one of my speciaties, but I’ll find work. If I could walk and stand up without tipping, or become so confused if I hear two things at once and I forget what I was doing, but I’ll figure out some mundane task to be paid minimum wage if an employer wants a fall risk on their payroll.
You need money to live, especailly if you’re a hypertensive diabetic with pernicious anemia and retinopathy. I take 9 medications by mouth daily. I take an insulin injection once weekly (better than twice a day just 1 month ago) and I take an injection once a month for Pernicious Anemia. I take blood sugar tests 2-3 times a day and my BP reguarly. That’s a lot to keep track of, but I manage. Everything sits within view and I set up my meds on a weekly basis, morning and evening. I have OCD, which comes in handy now.
I have carpal tunnel and a doctot has recommended surgery. My glasses prescription is 6 years old and my eyes have changed and not just because retinopathy. I drive a 1998 Oldsmobile Cutlass that my Dad bought before he died and it needs maintenance and wiper blades. I’ve got a Dell laptop from 2008 and it needs some time at Best Buy for worm removal and driver restoration. I can’t use my Tower because no currently paid virus protection. And my AAA Road Service has lapsed for non-payment. I stopped paying my credit card (just 1 – in case of emegency) months ago.
The GoFundMe is to provide for the cost of living until SSI comes through, hopefully soon. A friends’ sister was recently approved and that took 3 years. I’m a year and half in and had a lousy lawyer for the first 9 months.
My main storage unit is at Towncentre Self Storage in Brentwood and they won’t take partial payment per the district manager because it screws up their lien process. I am behind and the site manager has been told she can’t take a partial payment.
I am getting screwed out of my belongings – my life – because the District Manager is doing her job. Yes, they know about my situation. Yes, the site manager has compassion, but it’s still a businesa of real estate and that real estate has a price that needs payment.
Could I pay them $300? No. I need to pay them $660. I might be able to get $600, but I won’t be paying my car insurance, gas for that car or cell bill this month. $660, or she can’t take it.
My other unit is paid until November 29th. The rest of it is under a tarp on the patio where I am staying.
I need a place to live that has my things and not in storage. I purged everything I could when I packed Mom’s house. Gave away all I could. Even had a garage sale and listed on Criagslist. I lived in the backwater of Riverside County and they are CHEAP! 7′ aliminum ladder, months old that cost $70 at Home Depot, a little shit got it for $10 and it was SO EXPENSIVE. I sold it to him just to get rid of it, and he was pissed because I ripped him off.
Sure I did. That’s what privileged white people do that live in retirement communities. I hated it when Mom pulled “But I’m not from here, I don’t speak your language” crap. They know. They just assume you’re stupid or racist. I’m neither. I just hate that “I’m foreign, feel sorry for me” bullshit.
Think I don’t know? If you had any idea how many times I’ve told people I was born here and they don’t believe me – because of my name – and compliment me on my “good English”, I’m surprised I’m still free , because some folks need the stupid smacked off their smug mugs.
I’ve tried going to the press/media but I guess some one crying wolf isn’t sympathetic, even if it is real. I’ve lost my ability to work, to enjoy hikes, to drive to a nice area to walk away my worries for a few houra in nature, to sit and knit or do needlework or needlepoint, even to read for an hour or two, without my chaosed mind refusing to cooperate. I need some peace and that requires money. If I have to think about that, it becomes an obsession and I can’t sleep until I pass out, which for me varies amd depends if I have eaten well or just enough. If it’s just enough (1 meal a day and hopefully not Ramen), I can go 2-3 days without restful sleep, and my brain can’t take that.
Please go to my Campaign gofundme.com/Life4V and donate. I need help. I want to Live for however long I have and with my memories and savored remembrances of a life well lived.